Patients & Care Partners

Patient Advocacy at Deciphera: One Mission, Inspired by Patients

At Deciphera, we’re driven by our mission to discover, develop, and deliver breakthrough medicines that have meaningful impact on patients. We are determined to listen to and understand patient experiences so we can best discover, develop, and deliver new medicines to the people for whom there is high unmet need. We work hand-in-hand with patients, caregivers, and advocacy groups to drive clinical breakthroughs, shape access strategies, and create support programs that reflect varying perspectives and real-world experiences.

Advocacy Vision

“Deciphera is committed to meet the challenge of defeating disease by fostering inclusive, trust-based partnerships with the global patient communities we serve.”

- Deciphera Patient Advocacy Team

Through grants, sponsorships and research opportunities, Deciphera is committed to our patients, caregivers, advocacy groups, healthcare providers (HCPs) and researchers.

Please send all submissions and inquires to patientadvocacygrants@deciphera.com

Patient Stories

In the spring of 2018, my knee started to bother me with pain and swelling. I assumed I had injured myself and it would improve over time... We spent a lot of time walking and I wore a brace because my knee hadn’t gotten any better, and after getting home it became worse.

Corinne

Living with TGCT

I have served in the military most of my life... I was at the pinnacle of my career, named Senior Non-Commissioned Officer of the Year, when I noticed something was wrong. My right knee started to get in the way of my ability to do my job.

Woody

Living with TGCT

...Our journey with GIST has taught us the true meaning of resilience, partnership, and hope... The diagnosis of GIST was overwhelming. We didn’t know what it meant for our future, but we quickly learned the importance of finding the right care.

Steve & Joyce

Living with GIST

Family has always been at the heart of my life. Growing up in the Midwest with two older brothers, I dreamed of building a close-knit family of my own... Just days before my daughter’s birth in February 2018, I received a life-changing call: suspected sarcoma, with a large tumor on my abdomen and spots on my liver.

Matt

Living with GIST

Neil & Dawn

For more information about the diseases we target, please visit our Pipeline page.

Learn More

Deciphera may be able to provide access to an investigational medicine, under certain limited conditions, through our Expanded Access Program (EAP)

Read Our Expanded Access Policy

Community Resources

Advocacy organizations provide resources, information, and connections to other patients and members of the cancer community. If you are an individual, family member, or caregiver affected by GIST, TGCT, PCNSL or another cancer, consider visiting the below independently affiliated resources.

GIST Resources